Girl Scouts help build 'fragile' dreams

By Anna Yee

April 17, 2013 Updated Apr 17, 2013 at 9:53 PM CDT

CANTON, Ill. -- Allison Roos is earning her Girl Scout badges, an accomplishment that has taken more courage than most girls her age.

Ten-year-old Allison has Fragile X Syndrome, a hereditary, genetic disorder that causes developmental and social delays, among other symptoms.

Allison experiences anxiety, causing her to shy away from many social settings, until she joined the Girl Scouts.

"Different things that they do just to earn badges that are out in the community and improve those social skills and improve those relationships that she has with others, and so it's really been a great experience for her," said Allison's mother, Holly.

"She's conquering her fears," said Amy Allard, Allison's Girl Scout troop leader. "She'll speak up in meetings now. She's a very shy and quiet girl when you first get to know her, but then after she's at troop for a little bit and gets around the other girls, she's ready to go."

There is no medication to treat Fragile X specifically.

Statistics show many people go un-diagnosed or are misdiagnosed, and more than 1 million family members have or are at-risk of developing Fragile X-associated disorders.

"We need to be sure that everybody's aware of all of them," said Holly Roos, "because it doesn't just affect the children who have fragile x syndrome, but the carriers as well."

Allison's Girl Scout troop will be helping out at the 10th Annual Walk for Fragile X this Saturday, April 20, 2013, at Wallace Park, 250 South Ave D, Canton, IL 61520.

Race registration starts at 7:00 a.m. Walk registration starts at 9:00 a.m.

All proceeds will benefit the National Fragile X Foundation.

For more information, visit https://www.facebook.com/centralilfx or www.fragilex.org.

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