MANITO, Ill. --"When I'm low it kind of makes me dizzy and kinda sweaty. If I'm high I usually get a headache," said Keegan Kosmider, explaining his diabetes.
10-year-old Keegan's life took a 180 when he was diagnosed with Type I diabetes at age 5.
Keegan's mom, Tina Devall, said since his diagnosis they have had a few minor issues at his school, Midwest Central, but those have mostly been ironed out. However, this year Keegan said he is hitting roadblocks while trying to care for his diabetic needs on the bus.
"One bus driver told me I couldn't check my blood sugar on the bus," he said.
Devall added, "There was an incident where he was left here and not picked up by the bus because he had his water and water is something that he needs if his blood sugar is high."
Devall believes it is, in part, a lack of communication with the bus company.
"This bus driver said that they weren't even aware that Keegan had a medical condition and it's the school's responsibility to make them aware," she said.
Ed Kraus is a clinical professor at Chicago Kent College of Law. He has a focus in advocating for individuals with diabetes in education.
"A child with diabetes has a right to be safe," said Kraus.
Kraus said as long as it is written in a plan with the school that the child is capable, they should be able to check and manage levels wherever and however it makes sense. But he said more needs to be done in way of education.
"Another aspect that's really important in the transportation situation is having the bus driver get some basic training and understanding that you're driving a child who has diabetes," he said.
Devall said she is working with an advocate to get their care plan worked out with the school, in the meantime it remains a critical issue.
"Ultimately if he's not allowed to drink a juice when he is low, he could die. His life is at risk with that," she said.
The superintendent for Midwest Central, Todd Hellrigel would not go on camera to discuss this issue saying they do not discuss specific students. He did, however, release a statement saying the district makes all decisions with the best interests of the student's education and safety in mind.